Print Email Facebook Twitter Emotion toolkit to improve the quality of life of cancer patients Title Emotion toolkit to improve the quality of life of cancer patients Author De Wit, M.J.M. Contributor Melles, M. (mentor) Visch, V. (mentor) Faculty Industrial Design Engineering Department Industrial Design Programme Design for Interaction Date 2010-08-27 Abstract A breast cancer diagnosis and undergoing cancer treatment is often obtrusive into someone’s life. Breast cancer patients are facing an uncertain future and are dealing with side-effects of treatment. Over the years, many studies have been executed to map the emotional responses and the assessment of their ‘Quality of Life’ (QoL) over time. Different types of psychological interventions and communication-oriented services have been developed to help patients to adjust to their disease and treatment, but less attention has been paid to a product that may supplement current services or may execute psychological interventions in the personal environment of a patient. Breast cancer patients and breast cancer survivors, e.g. possible users of the prospective product, were involved in different studies to collect different levels of knowledge on the experience of breast cancer patients and their context to be able to design an appropriate emotion-based product. Such an emotion-based product should contribute by helping patients to adjust to their disease, deal with their emotions and improve their QoL over time. In this research project exploratory interviews gave insight into the (dominant) emotions and the emotional difficult situations in the daily life of breast cancer patients. Generative sessions were executed to gain in-depth knowledge about concerns, feelings, and attitudes breast cancer patients have from the moment they are diagnosed with cancer, concerning the past, present and future. Results of these studies show that the period after finishing treatments is indicated as the heaviest period since the cancer diagnosis. Breast cancer survivors are not able to fulfil expectations of themselves or from other people. Mostly, falling short of these expectations is caused by a lack of energy and power to undertake actions. Also the attention of other people will decrease from the moment breast cancer patients become breast cancer survivors, this may result in a feeling that they are let down by others. Many studies show that tiredness is one of the most common side effects of cancer treatment and may persist for months or even years after completion of breast cancer treatment. The important difference between tiredness after cancer and normal tiredness is that the gravity of the tiredness of breast cancer survivors is not in proportion with respect to the performed activity and effort cannot be objectively measured. The experience of the tiredness can only be subjectively assessed and communicated by the cancer survivor. The proposed emotion-based product connects perfectly to the subjective approach of the energy management of breast cancer survivors. The product contains of different beads, which represent different activities. By means of wiring the beads on a string, the user of the product will be able to assess the expected energy flow of the different activities within a day. The evaluation of activities will support the user to become an expert of her own energy management, to get insight into the course and moments the tiredness appears and express her emotions. This product aims to increase the sense of the self-well-being of breast cancer survivors and to make them conscious about their daily life planning. Setting goals for undertaking some (simple) activities or relaxing moments will support these women to manage their energy level and tiredness. By means of a physical visualization of their daily life activities and energy management, this product makes them become more aware of their daily life planning in a playful way. In addition this product enables them to indicate and communicate their emotions and energy usage to others. Evaluation interviews gave insight into the usability of the product and the user experience of the proposed emotion-based product. They also gave an indication of the possibilities for the use of this product in the field of cancer rehabilitation. Results of these studies show that this emotion-based product was well received by prospective users and experts in the field of cancer rehabilitation. Customization of the product by a prospective user was the main recommendation result of this study. Both parties indicated that the proposed emotion-based product has high potential to support people with their energy management, not only in the field of breast cancer, but also for other diagnosis, such as chronic pain and burn out. Subject emotionscancerquality of lifequalitative research To reference this document use: http://resolver.tudelft.nl/uuid:94f12fe0-3005-4320-8622-2c40059f695f Embargo date 2011-08-27 Access restriction Campus only Part of collection Student theses Document type master thesis Rights (c) 2010 De Wit, M.J.M.