Health data sharing for clinical research : Designing a patient-centric approach

The use of Electronic Health Records (EHRs) has seen a breakthrough in clinical research for personalized treatments (Hamburg & Collins, 2010.) Despite the potential advantages of vast EHR data available, constraints of privacy and legislation hinder its use (Rieke et al., 2020.) Health data exists in an interconnected healthcare system ...

Values for a Post-Pandemic Future

This open access book shows how value sensitive design (VSD), responsible innovation, and comprehensive engineering can guide the rapid development of technological responses to the COVID-19 crisis. Responding to the ethical challenges of data-driven technologies and other tools requires thinking about values in the context of a pandemic as well...