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Preference-based measure of social participation from the Handicap Scale for Children

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Author: Dommelen, P. van · Schuller, A. · Detmar, S. · Berg, B. van den · Groothuis-Oudshoorn, K.
Institution: TNO Kwaliteit van Leven
Source:Expert Review of Pharmacoeconomics and Outcomes Research, 3, 8, 309-317
Identifier: 240814
doi: doi:10.1586/14737167.8.3.309
Keywords: Health · Leefomgeving en gezondheid · Children · Chronic illness · Handicap Scale for Children · Modeling preference data · Preference-based measure · chronic disease · clinical assessment tool · clinical classification · daily life activity · early intervention · groups by age · Handicap Scale for Children · handicapped child · health care quality · human · internal consistency · orientation · physical activity · physical mobility · questionnaire · review · social disability · social interaction · statistical model · validation study


Objective: To establish a model that estimates a preference-based measure (valuation) of social participation for children between 8 and 18 years of age from the Handicap Scale for Children (HSC), a validated questionnaire for children with a chronic illness. Methods: Vignettes of the HSC classification system were valued by a representative sample of 249 persons aged 18 years onwards. Linear and nominal scale (mixed-effects) models were used to analyze the valuations of the vignettes. Results: We established a model that performed better than a model that simply sums up the levels of each dimension. Conclusion: We obtained a measure that can be used for assessing need, for quality assurance and for evaluating interventions on a group level aiming to increase social participation in children with chronic illnesses. © 2008 Expert Reviews Ltd.