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Generic health-related quality of life instruments in children and adolescents: A qualitative analysis of content

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Author: Rajmil, L. · Herdman, M. · Fernandez De Sanmamed, M.J. · Detmar, S. · Bruil, J. · Ravens-Sieberer, U. · Bullinger, M. · Simeoni, M.C. · Auquier, P. · Ravens-Sieberer, U. · Abel, T. · Atherton, C. · Auquier, P. · Aymerich, M. · Bauer, M. · Bellach, B.M. · Bisegger, C. · Bruil, J. · Cloetta, B. · Detmar, S. · Dür, W. · Erhart, M. · Farley, C. · Gosch, A. · Herdman, M. · Kurth, B.M. · Phillips, K. · Power, M. · Rajmil, L. · Robitail, S. · Simeoni, M.C. · Rüden, U. von · Verrips, E.
Type:article
Date:2004
Institution: TNO Preventie en Gezondheid
Source:Journal of Adolescent Health, 1, 34, 37-45
Identifier: 237566
doi: doi:10.1016/S1054-139X(03)00249-0
Keywords: Health · Content analysis · Generic instruments · Health-related quality of life · Child health · Child health and illness profile · Child health questionnaire · Dutch children AZL TNO questionnaire quality of life · Generic child questionnaire · German quality of life questionnaire · Pediatric quality of life inventory · Physical activity · Psychological aspect · Social aspect · Validation process · Vecu de sante percue adolescent · Adolescent · Adolescent Psychology · Attitude to Health · Child · Child Psychology · Health Status · Humans · Psychometrics · Quality of Life · Questionnaires · Sickness Impact Profile

Abstract

Purpose: To determine the extent of differences and similarities in content between heath-related quality of life (HRQOL) instruments for children and adolescents. Methods: A descriptive and explanatory qualitative approach was carried out. Instruments specifically designed for use with children or adolescents were included. To assure the validity of the findings a triangulation of the analysis and 'member checking' were performed. Results: Ten questionnaires were analyzed. All of them included items referring to physical, psychological, and social aspects of health. A relatively low number of categories explained the content of the questionnaires. Conclusions: A reasonably coherent notion of HRQOL underlies instruments available for children and adolescents. HRQOL measurement in young people is still in its developmental step. © Society for Adolescent Medicine, 2004.