Living a meaningful life and taking good care of oneself in times of illness

Highlighting a dilemma

Journal article (2019)

Authors

G. J. Teunissen VU University Medical Centre, Amsterdam UMC

P Lindhout Safety and Security Science -

K. Schipper VU University Medical Centre, Amsterdam UMC

T. A. Abma Amsterdam UMC

Research Group

Safety and Security Science () (TU Delft)

Self-management Belongingness Chronic illness Meaningful life Authoethnography

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http://resolver.tudelft.nl/uuid:36c79dd4-6384-4fce-8202-0cd482e66dc3

Published Date

2019

Language

English

Reuse Rights

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Faculty

Technology, Policy and Management

Department

Values Technology and Innovation

Research Group

Safety and Security Science

Abstract

An authoethnography explores the lived experiences of patients being in control and self-managing their chronic illness among their families and friends. Findings show that the current health discourse narrows down people to mere patients and gives rise to tensions. This article indicates that people with one or several chronic illnesses or disabilities are first of all full citizens with needs, values, and drives seeking a meaningful life. Fair possibilities ought to exist to satisfy their needs to belong, to care for and to matter to others since these constitute an essential aspect of being human.

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