Towards person-centred work-focused healthcare for people with cardiovascular disease
a qualitative exploration of patients’ experiences and needs
Marije E. Hagendijk (Universiteit van Amsterdam)
Nina Zipfel (Universiteit van Amsterdam)
M Melles (TU Delft - Human Factors)
Philip J. Van Der Wees (Radboud University Medical Center)
Carel T.J. Hulshof (Universiteit van Amsterdam)
Ersen B. Çölkesen (St. Antonius Hospital)
Jan L. Hoving (Universiteit van Amsterdam)
Sylvia J. van der Burg-Vermeulen (Universiteit van Amsterdam)
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Abstract
Purpose: To explore the experiences and needs concerning work-focused healthcare of patients experiencing problems with work participation due to cardiovascular disease based on all facets of person-centred care. Methods: Nineteen patients who experienced or continue to experience problems with work participation due to cardiovascular disease participated in semi-structured interviews preceded by preparatory written assignments. The transcripts were analysed by means of directed qualitative content analysis. Adapted principles of the Picker Institute for Person-Centred Care provided a template for the analysis. Results: 28 experiences and needs emerged and were grouped into the eight principles for person-centred work-focused healthcare. Randomly presenting one theme for each of the eight principles, the themes included: (1) frequent encounters with occupational healthcare professionals; (2) substantive work-related advice; (3) transparency in communication; (4) support for family; (5) information provision on the work-focused healthcare process; (6) personal control during the process; (7) empathy for the personal situation; and (8) tailored work-focused support. Conclusions: The identified experiences and needs for work-focused healthcare of patients experiencing problems with work participation due to cardiovascular disease clearly indicate the need to improve the delivery of person-centred work-focused healthcare to better meet the individual needs of patients.