Less Supervising, More Caring
Design Recommendations for Informal Caregivers’ Co-Participation in Cardiac Telerehabilitation
Irina Bianca Erban (Eindhoven University of Technology)
Lonneke Fruytier (Maxima Medical Center, Veldhoven)
S. Colombo (TU Delft - Human-Centred Artificial Intelligence)
Danny A.J.P. van de Sande (University Medical Center Utrecht)
Hareld Marijn Clemens Kemps (Maxima Medical Center, Veldhoven, Eindhoven University of Technology)
Steven Houben (Eindhoven University of Technology)
Aarnout Brombacher (Eindhoven University of Technology)
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Abstract
Informal caregivers’ engagement with patient data is becoming increasingly central to CSCW and HCI research on health management. Cardiac telerehabilitation (CTR) technologies generate lifestyle and well-being data that support patients and their families in recovery management, yet informal caregivers’ roles in CTR remain underexplored. Recreational athletes in rehabilitation are an especially under-researched group, despite their and their support system’s unique needs. Focusing on caregivers of recreational athletes, we conducted interviews with ten participants and used six visual scenarios of a dyadic CTR system to explore their perspectives on data and information co-participation. Caregivers reported that co-participation could strengthen dyadic coping and management but emphasized the need to balance important trade-offs. We provide design recommendations for dyadic CTR systems that balance care needs and preferences, promoting caregiver involvement in a supportive, non-supervisory role. We contribute to CSCW research by proposing a conceptual shift in technology-mediated rehabilitation care: positioning caregiver-inclusive CTR systems as negotiation tools that support boundary work and balance competing care values.
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