Advancing Design Approaches through Data-Driven Techniques

Patient Community Journey Mapping Using Online Stories and Machine Learning

Journal Article (2023)
Author(s)

Jiwon Jung (TU Delft - DesIgning Value in Ecosystems, Erasmus MC)

Ki Hun Kim (Pusan National University, TU Delft - DesIgning Value in Ecosystems)

T. Peters (TU Delft - DesIgning Value in Ecosystems)

Dirk Snelders (TU Delft - DesIgning Value in Ecosystems)

M.S. Kleinsmann (TU Delft - Design, Organisation and Strategy, Leiden University Medical Center)

Research Group
DesIgning Value in Ecosystems
Copyright
© 2023 Jiwon Jung, K. Kim, T. Peters, H.M.J.J. Snelders, M.S. Kleinsmann
DOI related publication
https://doi.org/10.57698/v17i2.02
More Info
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Publication Year
2023
Language
English
Copyright
© 2023 Jiwon Jung, K. Kim, T. Peters, H.M.J.J. Snelders, M.S. Kleinsmann
Research Group
DesIgning Value in Ecosystems
Issue number
2
Volume number
17
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Abstract

Designers are increasingly collaborating with data scientists to apply smart data technologies to understand large-scale user behavior during their design research. This is useful in specific impact domains with vulnerable users and unfamiliar contexts, such as healthcare design. Patient journey mapping is the most common design tool for developing and communicating patient-centred perspectives in healthcare design. However, creating a traditional patient journey map is labor intensive. Consequently, they often represent the experiences of a limited number of patients and, therefore, have limitations in including an extensive group patient experience. To overcome these challenges, we present a new data-driven and hybrid intelligent design approach that utilizes tens of thousands of online patient stories and machine-learning techniques through collaboration with data scientists. We set up two studies in the field of oncology and demonstrate that combining the two machine-learning techniques allows for quantifying the experiences of a wide range of patients, detecting relationships between co-occurring experiences within the journey, and detecting new design opportunities/directions. In these studies, designers gained a large-scale, yet qualitative and inspiring, understanding of a complex context in healthcare with reduced time and cost investments