Health data sharing for clinical research : Designing a patient-centric approach

The use of Electronic Health Records (EHRs) has seen a breakthrough in clinical research for personalized treatments (Hamburg & Collins, 2010.) Despite the potential advantages of vast EHR data available, constraints of privacy and legislation hinder its use (Rieke et al., 2020.) Health data exists in an interconnected healthcare system ...

Relevant Research Questions For Decentralised (Personal) Data Governance

Protecting and preserving individuals’ personal data is a legal obligation set out by the European Union’s General Data Protection Regulation (GDPR). However, the process of implementing data governance to support that, in a decentralised ecosystem, is still vague. Motivated by the need for lawful decentralised data processing, this paper...

Cross-modal distillation for RGB-depth person re-identification

Person re-identification is a key challenge for surveillance across multiple sensors. Prompted by the advent of powerful deep learning models for visual recognition, and inexpensive RGB-D cameras and sensor-rich mobile robotic platforms, e.g. self-driving vehicles, we investigate the relatively unexplored problem of cross-modal re...

Measuring the brussels effect through access requests: Has the European General Data Protection Regulation Influenced the Data Protection Rights of Canadian Citizens?

We investigate empirically whether the introduction of the General Data Protection Regulation (GDPR) improved compliance with data protection rights of people who are not formally protected under GDPR. By measuring compliance with the right of access for European Union (EU) and Canadian residents, we find that this is indeed the case. We...

Anonymization of 3D face models for GDPR compliant outsourcing to 3rd party companies

This study investigates whether an automatic anonymization algorithm that takes as input a 3D model of a human face can produce an output model exempt from General Data Protection Regulation (GDPR) biometric data definition. The algorithm first uses Random Sample Consensus (RANSAC) for registering the source point cloud globally to an oriented...

Exploring the adoption of the dataBox in the University: Interaction design for the data subject's perspective

The recently introduced General Data Protection Regulation (GDPR) allows universities to use WiFi Access data for their research activities. The richness, ubiquity, and scalability of WiFi tracking make it an extremely relevant resource for studying the behavior and mobility patterns of groups and social systems. However, it is also a sensitive...

Indisputable GDPR compliant signatures in ContractChain

Nowadays, entering into a contract with an overseas company still relies on postal services to send a printed contract, which is signed on paper. Lizard Global is developing an online platform for constructing, reviewing and signing digital contracts for one of their clients. In the original system, when a signee signed a contract, his personal...

The Impact of User Location on Cookie Notices: (Inside and Outside of the European Union)

The web is global, but privacy laws differ by country. Which set of privacy rules do websites follow? We empirically study this question by detecting and analyzing cookie notices in an automated way. We crawl 1,500 European, American,and Canadian websites from each of 18 countries. We detect cookie notices on 40% of websites in our sample. We...

From dignity to security protocols: a scientometric analysis of digital ethics

Our lives are increasingly intertwined with the digital realm, and with new technology, new ethical problems emerge. The academic field that addresses these problems—which we tentatively call ‘digital ethics’—can be an important intellectual resource for policy making and regulation. This is why it is important to understand how the new...

When Willeke can get rid of paperwork: A lean infrastructure for qualified information exchange based on trusted identities

As a frequent participant in eSociety, Willeke is often preoccupied with paperwork because there is no easy to use, affordable way to act as a qualified person in the digital world. Confidential interactions take place over insecure channels like e-mail and post. This situation poses risks and costs for service providers, civilians and...