Relevant Research Questions For Decentralised (Personal) Data Governance

Protecting and preserving individuals’ personal data is a legal obligation set out by the European Union’s General Data Protection Regulation (GDPR). However, the process of implementing data governance to support that, in a decentralised ecosystem, is still vague. Motivated by the need for lawful decentralised data processing, this paper...

When Willeke can get rid of paperwork: A lean infrastructure for qualified information exchange based on trusted identities

As a frequent participant in eSociety, Willeke is often preoccupied with paperwork because there is no easy to use, affordable way to act as a qualified person in the digital world. Confidential interactions take place over insecure channels like e-mail and post. This situation poses risks and costs for service providers, civilians and...

From dignity to security protocols: a scientometric analysis of digital ethics

Our lives are increasingly intertwined with the digital realm, and with new technology, new ethical problems emerge. The academic field that addresses these problems—which we tentatively call ‘digital ethics’—can be an important intellectual resource for policy making and regulation. This is why it is important to understand how the new...

Health data sharing for clinical research : Designing a patient-centric approach

The use of Electronic Health Records (EHRs) has seen a breakthrough in clinical research for personalized treatments (Hamburg & Collins, 2010.) Despite the potential advantages of vast EHR data available, constraints of privacy and legislation hinder its use (Rieke et al., 2020.) Health data exists in an interconnected healthcare system ...