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S. Rainey

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Conference paper (2026) - Christina Schneegass, Francesco Chiossi, Anna L. Cox, Dimitra Dritsa, Teodora Mitrevska, Stephen Rainey, Max L. Wilson
Research on Cognitive Personal Informatics (CPI) is steadily growing as new wearable cognitive tracking technologies emerge on the consumer market, claiming to measure stress, focus, and other cognitive factors. At the same time, with generative AI offering new ways to analyse, visualize, and interpret cognitive data, we hypothesize that cognitive tracking will soon become as simple as measuring your heart rate during a run. Yet, cognitive data remains inherently more complex, context-dependent, and less well understood than physical activity data. This workshop brings together HCI experts to discuss critical questions, including: How can complex cognitive data be translated into meaningful metrics? How can AI support users' data sensemaking without over-simplifying cognitive insights? How can we design inclusive CPI technologies that consider inter-personal variance and neurodiversity? We will map challenges and opportunities for CPI, considering recent AI advancements, and outline a research road map for the foreseeable future. ...

Characterizing the 'Harm' of Neurotechnological Mind Reading

Journal article (2025) - Stephen Rainey
Neurorights are widely discussed as a means of protecting phenomena like cognitive liberty and freedom of thought. This article is especially interested in example cases where these protections are sought in light of fast-paced developments in neurotechnologies that appear capable of reading the mind in some significant sense. While it is prudent to take care and seek to protect the mind from prying, questions remain over the kinds of claims that prompt concerns over mind reading. The nature of these claims should influence how exactly rights may or may not offer justifiable solutions. Overall, the exploration of neurotechnological mind reading questions here will come in terms of philosophical accounts of mental content and neuroreductionism. The contribution will be to present a contextualization of questions arising from ‘mind-reading’ neurotechnology, and appraisal of if or how neurorights respond to them. ...
Review (2025) - Sara Ben Hmido, Houssam Abder Rahim, Corrette Ploem, Boris Keller, Freek Daams, Matthijs Schakel, J. Carel Goslings, E. J.M. Nieveen van Dijkum, Stephen Rainey, Geert Kazemier, Marieke Bak
Background: Predictive models in surgery promise to improve clinical care by anticipating complications, guiding decision-making, and supporting personalized treatment strategies. Although their potential to enhance outcomes and efficiency is substantial, their integration into clinical practice also raises profound ethical challenges. Ethical Framework: These challenges span the entire lifecycle of predictive models from data collection and development to validation and clinical use. They touch upon patient privacy, algorithmic bias, transparency, and the shifting responsibilities of clinicians. Importantly, the ethical concerns are not isolated to one group but shared across patients, developers, and clinicians within a dynamic stakeholder relationship. Analysis: Key risks include biased or unrepresentative datasets, privacy breaches, opaque decision-making processes, and the danger of deskilling surgeons if reliance on algorithms becomes excessive. To mitigate these risks, strategies, such as out-of-distribution detection, standardized data collection, parallel model development, and continuous auditing, are essential. Beyond technical safeguards, embedding predictive models within a framework of accountability and patient-centered care is necessary to sustain trust and equity. Conclusion: The integration of predictive models into surgery requires more than technical excellence, and it demands ethical vigilance. Preparing future clinicians through education that emphasizes both clinical reasoning and ethical awareness is critical. By aligning predictive model development with human-centered values, healthcare systems can ensure that these innovations enhance surgical practice while safeguarding equity, transparency, and patient trust. ...

Implications from clinical use to industry and military contexts

Review (2024) - Yasemin J. Erden, Stephen Rainey
Exoskeletons are technologies that can help to increase or improve mobility, dexterity, and strength. They can be used as assistive devices, to restore lost affordances, or for rehabilitation. While mechanical exoskeletons are passive and rely on the body's power for movement, powered exoskeletons are active mechanical systems that can assist or enhance a user's capacity, including in strength and performance. They also offer scope to augment or enhance beyond simple medical support, with potential in the future for superhuman power and strength. While these technologies present promising clinical opportunities, including for those who want to regain walking capacity, they also bring ethical questions, such as about data privacy and accessibility. In addition, the physical features of the technology can prove mentally, physically, and financially demanding, and may be deployed in contexts where user choice and autonomy is constrained. In this article, we discuss these issues, and raise some pertinent ethical questions, not all of which can be easily answered. We touch upon medical and therapeutic uses, for industrial and workplace settings, and in military contexts specially, given these are contexts where such technology may be required or even imposed. We argue that reasonable optimism for such technologies needs to be tempered by sufficient ethical assessment to identify and address barriers to research, development, and use. As well as managing any impacts and expectations for the health and wellbeing of users, the potential impact on autonomy and the risk of coercion, we have to consider what kind of data may be recorded or used, and the risk that these technologies could exacerbate existing inequalities or harms. ...
Journal article (2024) - Stephen Rainey
This paper provides a justificatory rationale for recommending the inclusion of imagined future use cases in neurotechnology development processes, specifically for legal and policy ends. Including detailed imaginative engagement with future applications of neurotechnology can serve to connect ethical, legal, and policy issues potentially arising from the translation of brain stimulation research to the public consumer domain. Futurist scholars have for some time recommended approaches that merge creative arts with scientific development in order to theorise possible futures toward which current trends in technology development might be steered. Taking a creative, imaginative approach like this in the neurotechnology context can help move development processes beyond considerations of device functioning, safety, and compliance with existing regulation, and into an active engagement with potential future dynamics brought about by the emergence of the neurotechnology itself. Imagined scenarios can engage with potential consumer uses of devices that might come to challenge legal or policy contexts. An anticipatory, creative approach can imagine what such uses might consist in, and what they might imply. Justifying this approach also prompts a co-responsibility perspective for policymaking in technology contexts. Overall, this furnishes a mode of neurotechnology’s emergence that can avoid crises of confidence in terms of ethico-legal issues, and promote policy responses balanced between knowledge, values, protected innovation potential, and regulatory safeguards. ...
Journal article (2024) - Stephen Rainey
This article examines the idea of mind-reading technology by focusing on an interesting case of applying a large language model (LLM) to brain data. On the face of it, experimental results appear to show that it is possible to reconstruct mental contents directly from brain data by processing via a chatGPT-like LLM. However, the author argues that this apparent conclusion is not warranted. Through examining how LLMs work, it is shown that they are importantly different from natural language. The former operates on the basis of nonrational data transformations based on a large textual corpus. The latter has a rational dimension, being based on reasons. Using this as a basis, it is argued that brain data does not directly reveal mental content, but can be processed to ground predictions indirectly about mental content. The author concludes that this is impressive but different in principle from technology-mediated mind reading. The applications of LLM-based brain data processing are nevertheless promising for speech rehabilitation or novel communication methods. ...
Book (2023) - S. Rainey
Where there is data there are questions of ownership, leaks, and worries about misuse. When what’s at stake is data on our brains, the stakes are high. This book brings together philosophical analysis and neuroscientific insights to develop an account of ‘brain data’: what it is, how it is used, and how we ought to take care of it.

Emerging trends in neuroscience appear to make mental activity legible, through sophisticated processing of signals recorded from the brain. This can include Artificial Intelligence (AI), with algorithms classifying brain signals for further processing. These developments will have ramifications for concepts of the brain, the self, and the mind. They will also affect clinical practices like psychiatry, by modifying concepts of mental health and introducing AI-based diagnostic and treatment strategies. The issues arising are vastly complicated, little understood, but of high importance.

Philosophical Perspectives on Brain Data clarifies complex intersections of philosophical and neuroscientific interest, presenting an account of brain data that is comprehensible. This account can be the basis for evaluating practices based on brain data. As such, the book aims to open a novel space for evaluating hitherto arcane areas of academic research in order to provide the necessary scope for understanding their real-world consequences. These consequences will include personal, socio-political, and public health dimensions. It is therefore vital that they are understood if their impacts upon aspects of everyday life can be evaluated adequately. ...

Mapping Ethical and Legal Foundations of ‘Neurorights’

Journal article (2023) - Sjors Ligthart, Marcello Ienca, Gerben Meynen, Fruzsina Molnar-Gabor, Roberto Andorno, Christoph Bublitz, Paul Catley, Stephen Rainey, Philipp Kellmeyer, More authors...
The rise of neurotechnologies, especially in combination with artificial intelligence (AI)-based methods for brain data analytics, has given rise to concerns around the protection of mental privacy, mental integrity and cognitive liberty – often framed as “neurorights” in ethical, legal, and policy discussions. Several states are now looking at including neurorights into their constitutional legal frameworks, and international institutions and organizations, such as UNESCO and the Council of Europe, are taking an active interest in developing international policy and governance guidelines on this issue. However, in many discussions of neurorights the philosophical assumptions, ethical frames of reference and legal interpretation are either not made explicit or conflict with each other. The aim of this multidisciplinary work is to provide conceptual, ethical, and legal foundations that allow for facilitating a common minimalist conceptual understanding of mental privacy, mental integrity, and cognitive liberty to facilitate scholarly, legal, and policy discussions. ...
Journal article (2023) - S. Rainey
The skilled use of a speech BCI device will draw upon practical experience gained through the use of that very device. The reasons a user may have for using a device in a particular way, reflecting that skill gained via familiarity with the device, may differ significantly from the reasons that a speaker might have for their utterances. The potential divergence between reasons constituting skilled use and BCI-mediated speech output may serve to make clear an instrumental relationship between speaker and BCI speech device. This will affect the way in which the device and the speech it produces for the user can be thought of as being “reasons responsive”, hence the way in which the user can be said to be in control of their device. Ultimately, this divergence will come down to how ownership of produced speech can be considered. The upshot will be that skillful use of a synthetic speech device might include practices that diverge from standard speech in significant ways. This might further indicate that synthetic speech devices ought to be considered as different from, not continuous with, standard speech. ...
Journal article (2023) - S. Rainey
This paper argues that calls for neuro- rights propose an overcomplicated approach. It does this through analysis of ‘rights’ using the influential framework provided by Wesley Hohfeld, whose ana- lytic jurisprudence is still well regarded in its clar- ificatory approach to discussions of rights. Having disentangled some unclarities in talk about rights, the paper proposes the idea of ‘novel human rights’ is not appropriate for what is deemed worth protect- ing in terms of mental integrity and cognitive liberty. That is best thought of in terms of Hohfeld’s account of ‘right’ as privilege. It goes on to argue that as priv- ileges, legal protections are not well suited to these cases. As such, they cannot be ‘novel human rights’. Instead, protections for mental integrity and cogni- tive liberty are best accounted for in terms of familiar and established rational and discursive norms. Men- tal integrity is best thought of as evaluable in terms of familiar rational norms, and cognitive freedom is constrained by appraisals of sense-making. Concerns about how neurotechnologies might pose particular challenges to mental integrity and cognitive liberty are best protected through careful use of existing leg- islation on data protection, not novel rights, as it is via data that risks to integrity and liberty are manifested. ...

Datafied Brains and Digital Twins

Journal article (2022) - Stephen Rainey
Journal article (2022) - Stephen Rainey
This article provides analysis of the mechanisms and outputs involved in language-use mediated by a neuroprosthetic device. It is motivated by the thought that users of speech neuroprostheses require sufficient control over what their devices externalize as synthetic speech if they are to be thought of as responsible for it, but that the nature of this control, and so the status of their responsibility, is not clear. ...
Journal article (2022) - Stephen Rainey, Karmele Olaciregui Dague, Roger Crisp
This article examines the emerging possibility of "brain-state transitioning," in which one brain state is prompted through manipulating the dynamics of the active brain. The technique, still in its infancy, is intended to provide the basis for novel treatments for brain-based disorders. Although a detailed literature exists covering topics around brain-machine interfaces, where targets of brain-based activity include artificial limbs, hardware, and software, there is less concentration on the brain itself as a target for instrumental intervention. This article examines some of the science behind brain-state transitioning, before extending beyond current possibilities in order to explore philosophical and ethical questions about how transitions could be seen to impact on assessment of responsibility and personal identity. It concludes with some thoughts on how best to pursue this nascent approach while accounting for the philosophical and ethical issues. ...

Lessons From Industry, Caution For Psychiatry

Journal article (2022) - Stephen Rainey
This paper asks what sorts of ethical caution ought to attach to increasingly data-driven approaches to understanding the brain. This is taken to be an important question especially owing to a likely near future of neuromonitoring and neuromodulation devices with applications in psychiatry. The paper explores this by i) sketching the concept of ‘digital twin,’ ii) drawing a schematic picture of ‘brain datafication’ in general, and iii) developing a means of understanding some challenges present in datafication through the lens of digital twins. One central concern arises from the role algorithmic processing of neural recordings plays in terms of neuroscientific objectivity, with knock on effects for psychiatric ethics. Essentially, this is owing to a way in which algorithmic processing in brain data construction appears to be deductive in character, but is in fact based on a particular scheme of inductive inference. The challenges explored urge ethical caution as they concern epistemological gaps in data-centered neuroscientific progress, as well as knock-on effects for psychiatry. ...

Constructing Effective and Legitimate Responses

Journal article (2021) - Stephen Rainey, Maru Mormina, Sapfo Lignou, Joseph Nguyen, Paula Larsson
The ongoing COVID-19 emergency clearly presents novel challenges, both in terms of difficulties for maintaining public health and in assuring that governmental responses are ethically sound. Centrally, responses must respect, as best as possible, fundamental human rights and human values. Conflicts among values arise in response to the crisis, and public officials have no choice but to prioritize some while sacrificing others. Utilizing the concepts of effectiveness and legitimacy within the framework of post-normal science (PNS), we investigate and recommend processes and measures to address COVID-19 that support increased public health, while upholding established rights and values. The effectiveness and legitimacy of science-led policymaking requires investigation of how that policy ought to be made (e.g. concepts of policymaking and PNS), as well as how it ought to interact with diversely-constituted publics (e.g. public inclusion in policymaking and policy communication). ...

What AI can bring to the diagnostic process

Journal article (2021) - Yasemin J. Erden, Harriet Hummerstone, Stephen Rainey
This paper examines the use of artificial intelligence (AI) for the diagnosis of autism spectrum disorder (ASD, hereafter autism). In so doing we examine some problems in existing diagnostic processes and criteria, including issues of bias and interpretation, and on concepts like the ‘double empathy problem’. We then consider how novel applications of AI might contribute to these contexts. We're focussed specifically on adult diagnostic procedures as childhood diagnosis is already well covered in the literature. ...
Journal article (2021) - Hannah Maslen, Stephen Rainey
Implantable brain-computer interfaces (BCIs) are being developed to restore speech capacity for those who are unable to speak. Patients with locked-in syndrome or amyotrophic lateral sclerosis could be able to use covert speech – vividly imagining saying something without actual vocalisation – to trigger neural controlled systems capable of synthesising speech. User control has been identified as particularly pressing for this type of BCI. The incorporation of machine learning and statistical language models into the decoding process introduces a contribution to (or ‘shaping of’) the output that is beyond the user’s control. Whilst this type of ‘shared control’ of BCI action is not unique to speech BCIs, the automated shaping of what a user ‘says’ has a particularly acute ethical dimension, which may differ from parallel concerns surrounding automation in movement BCIs. This paper provides an analysis of the control afforded to the user of a speech BCI of the sort under development, as well as the relationships between accuracy, control, and the user’s ownership of the speech produced. Through comparing speech BCIs with BCIs for movement, we argue that, whilst goal selection is the more significant locus of control for the user of a movement BCI, control over process will be more significant for the user of the speech BCI. The design of the speech BCI may therefore have to trade off some possible efficiency gains afforded by automation in order to preserve sufficient guidance control necessary for users to express themselves in ways they prefer. We consider the implications for the speech BCI user’s responsibility for produced outputs and their ownership of token outputs. We argue that these are distinct assessments. Ownership of synthetic speech concerns whether the content of the output sufficiently represents the user, rather than their morally relevant, causal role in producing that output. ...
Journal article (2021) - Stephen Rainey, Alberto Giubilini
This paper presents a normative analysis of restrictive measures in response to a pandemic emergency. It applies to the context presented by the Corona virus disease 2019 (COVID-19) global outbreak of 2019, as well as to future pandemics. First, a Millian-liberal argument justifies lockdown measures in order to protect liberty under pandemic conditions, consistent with commonly accepted principles of public health ethics. Second, a wider argument contextualizes specific issues that attend acting on the justified lockdown for western liberal democratic states, as modeled on discourse and accounted for by Jürgen Habermas. The authors argue that a range of norms are constructed in societies that, justifiably, need to be curtailed for the pandemic. The state has to take on the unusual role of sole guardian of norms under emergency pandemic conditions. Consistently with both the Millian-liberal justification and elements of Habermasian discourse ethics, they argue that that role can only be justified where it includes strategy for how to return political decisionmaking to the status quo ante. This is because emergency conditions are only justified as a means to protecting prepandemic norms. To this end, the authors propose that an emergency power committee is necessary to guarantee that state action during pandemic is aimed at re-establishing the conditions of legitimacy of government action that ecological factors (a virus) have temporarily curtailed. ...
Book chapter (2021) - Stephen Rainey
Journal article (2020) - Stephen Rainey, Kevin McGillivray, Simi Akintoye, Tyr Fothergill, Christoph Bublitz, Bernd Stahl
Research-driven technology development in the fields of the neurosciences presents interesting and potentially complicated issues around data in general and brain data specifically. The data produced from brain recordings are unlike names and addresses in that it may result from the processing of largely involuntarily brain activity, it can be processed and reprocessed for different aims, and it is highly sensitive. Consenting for brain recordings of a specific type, or for a specific purpose, is complicated by these factors. Brain data collection, retention, processing, storage, and destruction are each of high ethical importance. This leads us to ask: Is the present European Data Protection Regulation sufficient to deal with emerging data concerns relating to neurotechnology? This is pressing especially in a context of rapid advancement in the fields of brain computer interfaces (BCIs), where devices that can function via recorded brain signals are expanding from research labs, through medical treatments, and beyond into consumer markets for recreational uses. One notion we develop herein is that there may be no trivial data collection when it comes to brain recording, especially where algorithmic processing is involved. This article provides analysis and discussion of some specific data protection questions related to neurotechnology, especially BCIs. In particular, whether and how brain data used in BCI-driven applications might count as personal data in a way relevant to data protection regulations. It also investigates how the nature of BCI data, as it appears in various applications, may require different interpretations of data protection concepts. Importantly, we consider brain recordings to raise questions about data sensitivity, regardless of the purpose for which they were recorded. This has data protection implications. ...