Visibility among brussen

Abstract

This research project created a tool designed to empower "brussen", the siblings of children with special needs, aged 7 to 12 to improve their visibility and recognition among their peers through play. Often overlooked within their families due to the primary focus on their siblings' needs, brussen face unique challenges regardless of the type of special need. They can find recognition and support in each other, but the term "brussen" is not widely known, complicating their ability to connect with peers. This project adopts a participatory design and research-through-design approach, engaging brussen in co-design sessions to ensure their perspectives shape the final outcome.

The research highlights the importance of visibility among brussen, with empowerment and play emerging as key elements within the design process. The design activities themselves contribute to knowledge generation, which helps to better understand the complex context of brussen. The project developed a personalized "ByBrus backpack" with velcro buttons, allowing brussen to express their identities and control their visibility in a playful manner. This personalization provides a sense of ownership and autonomy, as the buttons symbolize the unique stories, emotions, and experiences of the brussen. Through this approach, brussen can show their unique experiences, ultimately enhancing their visibility. By addressing the need for social recognition and support, the ByBrus backpack aims to create a sense of community and mutual understanding among brussen, contributing to their overall well-being and resilience.