Involving Patients in Data Decisions

Involving Patients in Data Decisions

Lionarons, M.

Sleeswijk Visser, F. (mentor)
Giaccardi, E. (mentor)

Industrial Design Engineering

Industrial Design

Design Conceptualization and Communication

2016-08-26

Data from health wearables promises to deliver value to all stakeholders by improving the quality of care, while making them more convenient and cost-friendly. However, many companies are collecting data now without a clear purpose, expecting it to pay out tomorrow. They handle the data as a currency, with similar risks and benefits, and often choose to leave their customers in the dark about data-related practices and focus on complying with security and privacy rules and regulations with large terms of agreements that nobody reads or understands. Meanwhile they leave their customers uneducated, often leading to a growing apprehension and reduction of trust. However, companies will achieve better results if they do not handle security and privacy as risks but as a brand differentiator. Gaining trust among consumers can become a market and product differentiation benefit, and an integral aspect of a company. Companies should not solely focus on complying with regulations with large terms of agreements but on complying with the trust frameworks inside the minds of their customers by actively engaging them through good communication. In order to do so they must: 1) Educate about data 2) Provide transparency in data use, collection, sharing and storage 3) Allow the user to control and intervene 4) Articulate a fair value and utility exchange for the data. In that way they will develop a long-term relationship with their customers based on digital trust.

Digital
Trust
Healthcare
Data
Decision-making
Strategy

http://resolver.tudelft.nl/uuid:094e2111-c3ea-489f-af62-46741f54b675

Campus only

Student theses

master thesis

(c) 2016 Lionarons, M.