Erasing stigmas through storytelling

Why interactive storytelling environments could reduce health-related stigmas

Journal Article (2024)
Author(s)

N.J.H. Vegt (TU Delft - Form and Experience)

Valentijn T. Visch (TU Delft - Form and Experience)

Wilbert Spooren (Radboud Universiteit Nijmegen)

Elisabeth F. C. van Rossum (Erasmus MC)

Andrea Evers (Universiteit Leiden, TU Delft - Human Factors, Erasmus Universiteit Rotterdam)

Annemiek van Boeijen (TU Delft - Form and Experience)

Research Group
Form and Experience
DOI related publication
https://doi.org/10.1080/24735132.2024.2306771
More Info
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Publication Year
2024
Language
English
Research Group
Form and Experience
Issue number
1
Volume number
8
Pages (from-to)
46-77
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Abstract

In this article we describe how designers can apply storytelling to reduce health-related stigmas. Stigma is a pervasive problem for people with illnesses, such as obesity, and it can persistently hinder coping, treatment, recovery, and prevention. Reducing health-related stigma is complex because it is multi-layered and self-perpetuating, leading to intertwined vicious circles. Interactive storytelling environments can break these vicious circles by delimiting the narrative freedom of stigma actors. We theoretically explain the potential of interactive storytelling environments to reduce stigma through the following seven functions: 1) expose participants to other perspectives, 2) provide a protective frame, 3) intervene in daily conversations, 4) persuade all stigma actors, 5) exchange alternative understandings, 6) elicit understanding and support for stigma victims, and 7) support stigma victims to cope with stigmatization. We elaborate on these functions through a demonstration of an interactive storytelling environment against weight stigma. In conclusion, this article is a call on designers for health and wellbeing, scientists, and practitioners from various disciplines to be sensitive to the pervasiveness of stigma and to collaboratively create destigmatizing storytelling environments.