Circular Image

J.H.M. Raijmakers

info

Please Note

4 records found

Exploring narrative medicine for designing AI-mediated remote patient monitoring

Book chapter (2026) - Somayeh Ranjbar, Tara Capel, Peter Lloyd, Douwe E. Atsma, Somaya Ben Allouch, Jeroen Raijmakers
This paper examines how care is enacted and understood within Remote Patient Monitoring (RPM) systems, which promise efficiency and autonomy but fragment care into data flows. Drawing on ethnographic fieldwork in a Dutch hospital’s RPM program for myocardial infarction patients, we analyze how stories, reassurance, and contextual interpretation unfold alongside structured data, revealing the promise and limits of AI-mediated care. Using narrative medicine’s triad of attention, representation, and affiliation, we identify how extractive data models overlook patients’ lived realities and relational dimensions of care. We propose three design provocations for exploring the application of AI in RPM systems: narrative layers which situate data within evolving stories, shared story construction which supports co-authored records, and temporal storytelling which captures care as an ongoing narrative. We argue narrativization is central and not supplementary to relational care, and position narrative medicine as a design lens for creating AI infrastructures that sustain human connection. ...
Book chapter (2024) - Somaya Ben Allouch, Roy Bendor, Elisa Giaccardi, Irina Yatskiv, Jeroen Raijmakers, Johan Redström, Irina Shklovski, Rachel Charlotte Smith, Chris Speed, Heather Wiltse

Does AI Need Designing? Exploring Design in Clinical AI

Conference paper (2024) - Somayeh Ranjbar, Jeroen Raijmakers, Peter Lloyd, Elisa Giaccardi, Somaya Ben Allouch
This Conversation at DRS2024 in Boston, attracting around 30 participants, centered on the evolving role of design within multidisciplinary AI teams, particularly in the context of the development of clinical AI applications. As AI is entering healthcare, questions are being raised if and how designers can contribute to AI-driven clinical solutions and whether they need to develop potential other skills and responsibilities. Drawing from ongoing research and insights from various workshops and interviews, the conversation highlighted the importance of the negotiation of agency between humans and machines in clinical settings, translational design for patients, data hierarchy and its impact on design, and finally the importance of language and storytelling in framing interactions mediated by AI. ...

Four approaches to using data for digital health design

Digital health technologies, powered by digital data, provide an opportunity to improve the efficacy and efficiency of health systems at large. However, little is known about different approaches to the use of data for digital health design, or about their possible relations to system-level dynamics. In this contribution, we identify four existing approaches to the use of data for digital health design, namely the silent, the overt, the data-enabled, and the convergent. After characterising the approaches, we provide real-life examples of each. Furthermore, we compare the approaches in terms of selected desirable characteristics of the design process, highlighting relative advantages and disadvantages. Finally, we reflect on the system-level relevance of the differentiation between the approaches and point towards future research directions. Overall, the contribution provides researchers and practitioners with a broad conceptual framework to examine data-related challenges and opportunities in digital health design. ...